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  4. GenoShare: Supporting Privacy-Informed Decisions for Sharing Individual-Level Genetic Data
 
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conference paper

GenoShare: Supporting Privacy-Informed Decisions for Sharing Individual-Level Genetic Data

Raisaro, Jean Louis
•
Troncoso-Pastoriza, Juan Ramon  
•
El-Zein, Yamane
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January 1, 2020
Digital Personalized Health And Medicine
30th Medical Informatics Europe (MIE) Conference

One major obstacle to developing precision medicine to its full potential is the privacy concerns related to genomic-data sharing. Even though the academic community has proposed many solutions to protect genomic privacy, these so far have not been adopted in practice, mainly due to their impact on the data utility. We introduce GenoShare, a framework that enables individual citizens to understand and quantify the risks of revealing genome-related privacy-sensitive attributes (e.g., health status, kinship, physical traits) from sharing their genomic data with (potentially untrusted) third parties. GenoShare enables informed decision-making about sharing exact genomic data, by jointly simulating genome-based inference attacks and quantifying the risk stemming from a potential data disclosure.

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Type
conference paper
DOI
10.3233/SHTI200158
Web of Science ID

WOS:000625278800048

Author(s)
Raisaro, Jean Louis
•
Troncoso-Pastoriza, Juan Ramon  
•
El-Zein, Yamane
•
Humbert, Mathias
•
Troncoso, Carmela  
•
Fellay, Jacques
•
Hubaux, Jean-Pierre  
Date Issued

2020-01-01

Publisher

IOS PRESS

Publisher place

Amsterdam

Journal
Digital Personalized Health And Medicine
ISBN of the book

978-1-64368-083-5

978-1-64368-082-8

Series title/Series vol.

Studies in Health Technology and Informatics

Volume

270

Start page

238

End page

241

Subjects

Health Care Sciences & Services

•

Medical Informatics

•

genomic privacy

•

privacy-conscious tools

•

risk quantification

•

inference

Peer reviewed

REVIEWED

Written at

EPFL

EPFL units
LDS  
SPRING  
Event nameEvent placeEvent date
30th Medical Informatics Europe (MIE) Conference

Geneva, SWITZERLAND

Apr, 2020

Available on Infoscience
May 8, 2021
Use this identifier to reference this record
https://infoscience.epfl.ch/handle/20.500.14299/177936
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