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research article

How I became myself after merging with a computer: Does human-machine symbiosis raise human rights issues?

Gilbert, Frederic
•
Ienca, Marcello  
•
Cook, Mark
May 5, 2023
Brain Stimulation

Novel usages of brain stimulation combined with artificially intelligent (AI) systems promise to address a large range of diseases. These new conjoined technologies, such as brain-computer interfaces (BCI), are increasingly used in experimental and clinical settings to predict and alleviate symptoms of various neurological and psy-chiatric disorders. Due to their reliance on AI algorithms for feature extraction and classification, these BCI systems enable a novel, unprecedented, and direct connection between human cognition and artificial infor-mation processing. In this paper, we present the results of a study that investigates the phenomenology of human -machine symbiosis during a first-in-human experimental BCI trial designed to predict epileptic seizures. We employed qualitative semi-structured interviews to collect user experience data from a participant over a six -years period. We report on a clinical case where a specific embodied phenomenology emerged: namely, after BCI implantation, the patient reported experiences of increased agential capacity and continuity; and after device explantation, the patient reported persistent traumatic harms linked to agential discontinuity. To our knowledge, this is the first reported clinical case of a patient experiencing persistent agential discontinuity due to BCI explantation and potential evidence of an infringement on patient right, where the implanted person was robbed of her de novo agential capacities when the device was removed.

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Type
research article
DOI
10.1016/j.brs.2023.04.016
Web of Science ID

WOS:001006538500001

Author(s)
Gilbert, Frederic
Ienca, Marcello  
Cook, Mark
Date Issued

2023-05-05

Publisher

ELSEVIER SCIENCE INC

Published in
Brain Stimulation
Volume

16

Issue

3

Start page

783

End page

789

Subjects

Clinical Neurology

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Neurosciences

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Neurosciences & Neurology

•

ai

•

brain -computer interfaces

•

data

•

explantation

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implantation

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human right

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neuro-right

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deep brain-stimulation

•

autonomy

Editorial or Peer reviewed

REVIEWED

Written at

EPFL

EPFL units
SHS-ENS  
Available on Infoscience
July 3, 2023
Use this identifier to reference this record
https://infoscience.epfl.ch/handle/20.500.14299/198740
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