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000255071 005__ 20190619220026.0
000255071 0247_ $$2doi$$a10.5075/epfl-irgc-255071
000255071 037__ $$aREP_WORK
000255071 245__ $$aWorkshop Report: Governance of Trust in Precision Medicine
000255071 269__ $$a2018
000255071 260__ $$aLausanne$$bEPFL International Risk Governance Center$$c2018
000255071 336__ $$aReports
000255071 500__ $$aThis publication should be cited as: EPFL IRGC (2018). Governance of trust in precision medicine. Lausanne: EPFL International Risk Governance Center.
000255071 520__ $$aFollowing up a two-day invitation-only expert workshop in Geneva on the subject of Trust and Precision Medicine, IRGC published a workshop report in April 2018. This report addresses the concept of trust and conditions of trustworthiness in each of the three stages or components of the precision medicine value chain: data collection, data analysis and provision of medical care. It suggests some recommendations for strategies that earn and provide evidence of trustworthiness, and sustain public trust around precision medicine, including communication, transparency and ways to assess trust.
000255071 6531_ $$aIRGC
000255071 6531_ $$aprecision medicine
000255071 6531_ $$atrust
000255071 6531_ $$atrustworthiness
000255071 700__ $$g228955$$aFlorin, Marie-Valentine$$0254419
000255071 700__ $$aBejtullahu-Michalopoulos, Kujtese
000255071 8560_ $$falain.borel@epfl.ch
000255071 8564_ $$uhttps://infoscience.epfl.ch/record/255071/files/Trust%20in%20Precision%20Medicine%20-%20IRGC%20Nov2017%20workshop%20summary%20FINAL.pdf$$zFinal$$s1645879
000255071 8564_ $$uhttps://infoscience.epfl.ch/record/255071/files/Trust%20in%20Precision%20Medicine%20-%20IRGC%20Nov2017%20workshop%20summary%20FINAL.pdf?subformat=pdfa$$zFinal$$s2619283$$xpdfa
000255071 909C0 $$xU12705$$manca.rusu@epfl.ch$$zBorel, Alain$$0252602$$yApproved$$pIRGC
000255071 909CO $$qGLOBAL_SET$$pDOI$$preport$$ooai:infoscience.epfl.ch:255071
000255071 960__ $$aanca.rusu@epfl.ch
000255071 961__ $$alaurence.gauvin@epfl.ch
000255071 973__ $$aEPFL$$sPUBLISHED$$rREVIEWED
000255071 980__ $$aREP_WORK
000255071 981__ $$aoverwrite