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  4. KGP Meter: Communicating Kin Genomic Privacy to the Masses
 
conference paper

KGP Meter: Communicating Kin Genomic Privacy to the Masses

Humbert, Mathias
•
Dupertuis, Didier  
•
Cherubini, Mauro
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January 1, 2022
2022 Ieee 7Th European Symposium On Security And Privacy (Euros&P 2022)
7th IEEE European Symposium on Security and Privacy (IEEE EuroS and P)

Direct-to-consumer genetic testing services are gaining momentum: As of today, companies such as 23andMe or AncestryDNA have already attracted 26 million customers. These services raise privacy concerns, exacerbated by the fact that their customers can then share their genomic data on platforms such as GEDmatch. Notwithstanding their right to learn about their genetic background or to share their genomic data, it is paramount that individuals realize that such a behavior damages their relatives' privacy (i.e., kin genomic privacy). In this paper, we present KGP Meter, a new online tool that provides means for raising awareness in the general public about the privacy risks of genomic data sharing. Our tool features various properties that makes it highly interactive, privacy-preserving (i.e., not requiring access to the actual genomic data), and user-friendly. It explores possible configurations in an optimized way and combines well-established graphical models with an entropy-based metric to compute kin genomic privacy scores. Our experiments show that KGP Meter is very responsive. We design and implement an interface that enables users to draw their family trees and indicate which of their relatives' genomes are known, and that communicates the resulting privacy scores to the users. We then analyze the usage of the tool and survey users to better understand users' perceptions towards these risks and evaluate our tool. We observe that most of them find the privacy score worrisome, and that the large majority of them find KGP Meter useful.

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Type
conference paper
DOI
10.1109/EuroSP53844.2022.00033
Web of Science ID

WOS:000851574500025

Author(s)
Humbert, Mathias
Dupertuis, Didier  
Cherubini, Mauro
Huguenin, Kevin
Date Issued

2022-01-01

Publisher

IEEE COMPUTER SOC

Publisher place

Los Alamitos

Published in
2022 Ieee 7Th European Symposium On Security And Privacy (Euros&P 2022)
ISBN of the book

978-1-6654-1614-6

Start page

410

End page

429

Subjects

Computer Science, Information Systems

•

Computer Science, Interdisciplinary Applications

•

Computer Science, Theory & Methods

•

Computer Science

Editorial or Peer reviewed

REVIEWED

Written at

EPFL

Event nameEvent placeEvent date
7th IEEE European Symposium on Security and Privacy (IEEE EuroS and P)

Genoa, ITALY

Jun 06-10, 2022

Available on Infoscience
September 26, 2022
Use this identifier to reference this record
https://infoscience.epfl.ch/handle/20.500.14299/190975
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